Now I Can is lucky to have a little friend named Trey. We have been inspired by him and his family and we hope you will be, too. Here are some moving–and funny–excerpts shared by his Mom, Tiffany. Also, catch Trey’s awesome comedy act from our last benefit concert! Click here to see the video. We love that Trey has the great skill of laughing at himself–we can all learn from that
Learning to adapt to life with a child who has special needs has been similar to the thought of learning to run a marathon (which I hope to do someday). I have some small clue how to run, just as I have a very slight clue of how to be a Mom. But, I possess a serious lack of knowledge… I don’t know the best shoes or gear to purchase, the amount of time to set aside each day or the distance to run to work up to 26.2! I don’t know how you build up stamina and mental strength, or even where to begin most days. It all seems so overwhelming.
Trey Dawg is my buddy. My smile in a fit of tears, the sugar in my soda, my hug when I feel alone and the cocoa in my brownies! One of Trey’s superpowers is love! He will melt the hardest of hearts, the daggers in someone’s eye and the frown lines on one’s forehead. He rarely complains and is positive in nearly every situation. And that, my friends, is NO exaggeration!
I had no idea what Trey’s diagnosis would entail. Needless to say the last 9 and a half years, we have made it through by trial and error…by just putting one foot in front of the other. With Trey reminding me that he is FINE! Trey weighs 65 pounds and is too big for baby/toddler strollers. He has a power wheelchair that he uses (mostly at school) but it’s big and bulky and hard to tote around. He refuses to use forearm crutches because he feels “unsafe” and “stuck” when he falls, and riding in a shopping cart is for babies! He quickly runs out of steam, but pushes himself until his legs give out, It’s NEVER his mind. As a Mom, it often digs at my heart to watch Trey. I might not feel so sad about things if he were grumpy or upset about the things he “can’t” do. But he is not. He is happy.
Instead of getting hung-up or on those things and letting a diagnosis stop us, we find ways to “adapt” to those things. More often than not, I find myself saying “Come on Trey Dawg, let me carry you”. His gigantic smile is always my answer and it melts my heart.
I get to carry him, run with him, and jump with him. All the while getting to hear his sweet little laugh close to my ears! And… I am again reminded that heaven is right there, held tight in my arms. I am reminded that I am lucky this little superhero calls me MOM. This I know for sure: Trey is UNBELIEVABLE. Anyone that meets him, falls instantly in LOVE. That he inspires so many people just by being Trey! If you are lucky enough to know this little man, you know what I mean. If you don’t, MY PRAYER FOR YOU, IS SOMEDAY YOU WILL KNOW HIM. YOU WILL BE FOREVER CHANGED!
A funny story about coping–
Trey has always been great at figuring out how to cope. This week, there has been no shortage of coping skills or laughs! I took the kids to grab a bite to eat after a long day at Lainey’s cheer comp… Trey really, I mean REALLY enjoyed his ice cream. He enjoyed it to the point that napkins failed miserably and he needed some pretty major assistance to get cleaned up. So, yes, I did what any mom would do and made him come into the women’s bathroom with me. Going in, he was fine. That’s nothing new in our lives. But… Something happened in the 2 minutes we were in there. Trey didn’t want to walk out for fear he would be seen exiting the GIRL’S RESTROOM!!! So I told him that no one cared, and it would be fine, people out there weren’t even watching, etc. All of the things a good mom would tell her son in such a predicament. Funny thing… He didn’t buy it. Then I heard these words come out of my 9 year old’s mouth…
“Um Mom… This is how this situation is going to roll out… I am just going to pretend that I am one of those kids who can’t do anything. I can’t walk, I can’t talk, or eat, or anything else. Then if people are looking at me I won’t even know because my eyes are closed and thy will just think ‘oh, that poor kid’. So you just have to pick me up and we’ll be on our way. No harm, no foul.” Then he held onto my hand and let his legs give out.
It took me a second after he started with his proposition, to process it. When my brain finally caught up, I could do NOTHING but laugh (extremely hard)!
You can see for yourself how the situation “rolled out”! I have to give him props for some mad coping skills and keeping a smile on so many faces!